Saturday, September 26, 2009

San Jose Liver Walk

On September 12th joined in the American Liver Foundation Liver Life Walk in San Jose. I was invited to be a guest speaker at the walk. I also had my own team- the Mattingly Miracle Team, that participated in the walk. Below are some pictures from the walk along with a copy of the speech I gave.

I have been asked to speak again at the Liver Life Walk in San Francisco on October 10th.

Chilling out with my peeps


Telling my story before the walk

Walking, of course!
These are the T-shirts that were given out to the walkers. My shirt was given to those who either are living with liver disease or who had a liver transplant.


Our friend, Seth, helped carry our team sign which was a big poster of John with the words, 'Mattingly Miracle' on the left side and 'For John' on the right side.
Here is a copy of the speech that I gave:


Hello everyone. My name is Michelle Mattingly and I would like to share with you the reason I am here today.

On August 3, 2008 I walked into Stanford Hospital with what I though was a stomach flu. At the time I was 6 months pregnant and everything was going okay. We only came to the labor and delivery as a precaution. If I had not been pregnant I would not have gone to the hospital at all.
In the next 24 hours I would slip into a coma as my liver began to shut down. I had acute liver failure. My life and the life of my unborn child was slowly ticking away. My husband was advised to start planning funeral arrangements for us. On August 8th, with only hours remaining, a rare back-to-back C-section and liver transplant was performed to save both our lives.
Our son, John, fought for the next six months outside the womb, but lost his battle in February of this year.
Today, I walk in memory of John, in thankfulness of the doctors who had the courage to do the impossible and for the hope that one day we can know the answers that will help save another mother from facing what I have gone through.

Despite all the testing done, to this day, my doctors still do not know why my normal healthy liver suddenly failed. The reason is because there are more questions then answers when it comes to liver disease.
Too much stigma, stereotypes and myths surround liver disease. And for far too long these misconceptions have gone on unchallenged. This has resulted in lack of funding, inadequate research, and poor public knowledge of liver health.
Liver disease should no longer be hidden in the background like a dirty little secret. Through the American Liver Foundation we can finally push this disease to the forefront of medical research and bring an end to the over 30 million Americans suffering from this disease.
Although the numbers of those suffering from liver disease are staggering, the most important numbers are the ones I see before me today. Survivors, family, friends, medical professionals- it is your numbers and your support of the American Liver Foundation that will help bring hope those who continue to suffer in silence.

Many people have causes that they care about. But it takes a special kind of courage and determination to take action for what you believe in. I want to thank you all for the courage and strength to be here today. It is an honor walking with you. Thank you.


What You've Been Waiting For...


Thank you all for waiting so patiently for me to update you on what has been going on with CPS surrounding Elektra.

As many of you may know from the stories on the news or from personal experience- CPS can be like a never ending tunnel of despair that once your family is sucked into the system, there seems to be no way out. CPS is infamous for destroying families and damaging children for life. We did not want that to happen to our family.

For that reason we took the best option available to us at this time, which was to give legal guardianship of Elektra to Ray‘s sister and brother-in-law, Corinna and Mike. Doing this closed the CPS case without having to go into a long drawn out legal battle (which we can not afford at this time). It also allows Corinna to get back to her family and Elektra to get some normality back in her life.
Corinna has already been living here taking care of Elektra so that she would not have to be in a foster home during all this. They have formed a wonderful bond and Corinna and Mike love her very much and will keep her close to both sides of our families. So, Elektra now lives with them on the east coast.
Ray is working with the Navy to get his next permeate duty station as close to Elektra as possible. That way we will continue to be a part of our daughter’s life. Elektra is our daughter and she knows and will always know that we are her parents.

I will let you know now, that I do not wish this situation on even my worst enemy. Ray and I have cried over this more times then we care to count. Our house is empty of the sound of small giggles and tiny feet running around. Instead of planning family outings, we are now trying to find ways to avoid places with too many kids because it’s just so painful. This is the greatest heartbreaking sacrifice we've had to make and I pray that no one EVER has to go through what we have gone through.

We both try to keep positive, reminding ourselves that by making this decision, we have saved Elektra from being yet another victimized and damaged child - the product of the CPS system. We would do anything to protect her smile, her laugh, her love of life. We don’t want anyone or anything to change the beautiful person that she is.

We will do our best visit her now as often as time and finances allow. Between flights to see her, we will use email, webcam, letters and packages to keep in touch with Elektra and let her know that we love and miss her so much.

Now to clear things up for you, the CPS case has been closed, but there is still an open investigation on us on the criminal end. I really don’t have any other details about that at this time. Ray and I continue to do research and collect information so when we can afford to, we can get Elektra back. The medical truth is out there and we will find it. It’s just going to take time and money.

Again, thank you all for your patience in this matter. Thank you for your prayers, positive energy and continued support. We love you all.

The Promise Made


Shortly after John was born, we made a promise to our kids that we would take them to Disneyland. In fact, Ray was looking at Disney hotel packages the day before John went to the hospital.

So on September 16th we went to Disneyland. It was Ray, Corinna, Elektra, Mimz, (aka- Linda), and myself.

Elektra had so much fun! And it was wonderful to just forget about all that has happened this year and just allow ourselves to be absorbed into the magic that is Disney.
What follows are a ton of pictures from our three days at Disneyland. Enjoy!

Road Trip!


The Lunch of Champions!

Corinna and her feet on the dashboard- so typical!


Elektra and her feet on the back seat- so very typical!
(that's the headphones to my IPod wrapped around her foot.)


Say Cheese!


Elektra got to meet so many celebrities at Disneyland and California Adventure.
Here she is getting an autograph from Aurora (aka Sleeping Beauty)


Who's the fairest of them all?



Chatting with Cinderella


Having princess time with Mulan


Oh no! Don't let her near the puppies!


Entering the land of fairies

Elektra could not believe she was meeting Tinkerbell in person. She was speechless!


Hey, what you looking at?

Ray and Corinna getting ready to scream on the Screamer.


Elektra on the new Toy Story ride at California Adventure

Our score after the game. I'm player 1, Elektra is player 2. Not too bad baby girl.


A hug from Woody's girlfriend from Toy Story 2

California Adventure has a Pixar Water Parade. Each float and character has something that
shoots water out into the audience. It was so cool!







On the very last night in Disneyland, Elektra finally got to meet someone she has been waiting her whole life to see, Minnie Mouse.


Happy Anniversary Chuck and Janice!

Although our pastor, Chuck Austin, has stepped down as senior pastor of Willow Glen Baptist Church he still continues to hang out with us and we have become good friends on Facebook. On September 12th Chuck and his wife, Janice, celebrated their 30th wedding anniversary with a huge Hawaiian luau.


Let them eat cake
Yum!

Happy Couple

Smile Janice!

Everyone starts to dig in
(that's their daughter, Holly, on the left)

Getting Chuck up to dance. (this should be interesting)


Wow, pastors can dance!


Yeah Janice! You go girl!
It was a wonderful party with a ton of food and great company. The pulled pork was awesome! Sorry, no pictures of the food or cake, I was just too busy eating it!








Tuesday, September 22, 2009

Style. Substance. Soul. - Article Feature

Another unexpected feature occurred today from a wonderful growing site that I have been a part of for some time now.

The site is called Style. Substance. Soul. This mention of my company was presented in their E-newsletter that is sent out to thousands of their subscribers.

The cool thing is that my company is mentioned in an article inspired by Coco Chanel.

I am so totally honored for such a mention.

http://www.stylesubstancesoul.com/newsletters/coco_style.html